Down Syndrome

In the days leading up to receiving Everett’s karyotype results, we met with his genetic counselor. We were given a list of things that kids with DS are predisposed to including AAI (atlantoaxial instability). This is when there is slippage in the vertebrae. Kids with …

We found out that Everett has Down syndrome moments after he was born (this is called a birth or postnatal diagnosis). In those moments after we heard of his diagnosis, a rush of fears went through my mind. One that I can painfully recall, was …