Confessions of a Rockin Mom #21:  Fear of early genetic testing

Confessions of a Rockin Mom #21: Fear of early genetic testing

In this confession I’m going to address prenatal testing with one caveat — this post is NOT, I repeat NOT, meant to stir up personal and political opinions related to pro-life/pro-choice issues. If anyone comments as such, your remarks will be deleted. Here goes. When…

Confessions of a Rockin mom #20:  Fear of reaching out

Confessions of a Rockin mom #20: Fear of reaching out

I mentioned in a previous post that we were quiet about Everett’s diagnosis on social media for about a year. To add to that, I’ll have to confess…I took a long social media break during those early days. It was just too hard. I was…

Confessions of a Rockin mom #19:  Fear of breaking the news

Confessions of a Rockin mom #19: Fear of breaking the news

¬†We didn’t announce the fact that Everett was diagnosed with Trisomy21 until he was about a year old. We told friends & family, but we let our social media peeps figure it out for themselves over time. I believe I made it FB official 2…

Confessions of a Rockin mom #18:  Fears related to growth patterns

Confessions of a Rockin mom #18: Fears related to growth patterns

Looking back, I had an early fear that quite frankly was a little ridiculous. After Everett was born, I immersed myself in any and all research related to Down syndrome. I learned quickly that kiddos with DS often are shorter and smaller than their typically…

Confessions of a Rockin mom #17:  Fears related therapies

Confessions of a Rockin mom #17: Fears related therapies

I get a lot of praise from others who describe me as a stellar parent, which means a lot to me (thank you to those who have said that). Being a good parent falls right under living a Christ-like life, in my book. But I’ll…

Confessions of a Rockin mom #16:  Fear of the unknown

Confessions of a Rockin mom #16: Fear of the unknown

For the first year of Everett’s life I spent a lot of time and emotion worrying about him. At night as I was falling asleep, I would worry. When I woke up, the worry would begin again. And I would worry and pray all the…

Confessions of a Rockin mom #15:  Fear of inclusion in bible class

Confessions of a Rockin mom #15: Fear of inclusion in bible class

Bible class is a big deal to us, especially for our children. I have the greatest memories of bible class, VBS, youth group activities & church camps, from when I was growing up. I’ve always hoped and prayed that both of my children would build…

Confessions of a Rockin mom #14:  Fear of acceptance (or lack thereof)

Confessions of a Rockin mom #14: Fear of acceptance (or lack thereof)

The (as in “THE”) greatest fear I had for Everett after we learned he had DS, was that no one would accept him for who he was. I worried that anyone he encountered (friends, family, acquaintances, and strangers) would not fully accept him because of…

Confessions of a Rockin mom #13:  Fear of labeling

Confessions of a Rockin mom #13: Fear of labeling

Read the enclosed link which features a letter authored by my dear friend and fellow Rockin mom. Let me tell you…from my experience (and the experiences of others), many healthcare professionals know very little about Down syndrome beyond the diagnosis. And unfortunately, many of these…

Confessions of a Rockin mom #12:  Fears of medical costs & Down syndrome

Confessions of a Rockin mom #12: Fears of medical costs & Down syndrome

I distinctly remember the medical bills rolling in after Everett was born. Geneticists, hospital bills, specialist co-pays, pediatrician visits, home healthcare, lab tests, you name it. We also decided early on that Everett would attend Kinderfrogs at TCU, no matter what the cost. So obviously,…