FriendAbility:  A Tale of Two Down syndrome Diagnoses

FriendAbility: A Tale of Two Down syndrome Diagnoses

Got a little story for ya Ags! And if you’re not an Ag, I’ve still got a little story for ya. Once upon a time a young 18-year-old named Cara, embarked on one of the greatest adventures of her life – college. Young Cara spent 

Sneak Preview of TEDxACU

Sneak Preview of TEDxACU

Welcome Back Wildcat! — A TEDxACU Talk Brings me Back to ACU I am so excited to announce that this year, 3 days after World Down syndrome Day, I have been invited to give a TEDxACU presentation at Abilene Christian University!  When it comes to campus 

Confessions of a Rockin mom #30:  Fears related to Down syndrome & holidays

Confessions of a Rockin mom #30: Fears related to Down syndrome & holidays

This is my final confession of the series (and Down syndrome Awareness Month -2016) and for obvious reasons, it will address Halloween! For Everett’s very first Halloween we dressed him up as a baby skeleton and I bought Vic & I matching skeleton tees (the 

Confessions of a Rockin mom #29: Fears related to preterm labor & Down syndrome

Confessions of a Rockin mom #29: Fears related to preterm labor & Down syndrome

Everett was born nearly five weeks early. Vic & I were both convinced it was false labor and we were shocked when the doctor on duty told us we were having a baby the night of May 26th, 2013. Everett was born that morning of 

Confessions of a Rockin mom #28:  Fears related to having more children

Confessions of a Rockin mom #28: Fears related to having more children

We were overjoyed when we found out that I was expecting a sibling for Everett. And when we learned Liam was a little boy, we couldn’t believe how blessed we were. Two little boys…brothers! For 9 months we waited patiently and happily for little Liam’s 

Confessions of a Rockin mom #27:  Fear of Down syndrome markers

Confessions of a Rockin mom #27: Fear of Down syndrome markers

Because Everett was diagnosed with Down syndrome right after he was born, we had to order a karyotype blood test to confirm his diagnosis. In the meantime, all we had to go on in gauging whether he had DS or not, were some physical characteristics. 

Confessions of a Rockin mom #26:  Fear of “slower” milestones

Confessions of a Rockin mom #26: Fear of “slower” milestones

Fact — “Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.” (NDSS.org). Let’s focus on the second part of this statement 

Confessions of a Rockin mom #25:  Fears related to growing up

Confessions of a Rockin mom #25: Fears related to growing up

When I was about 7 1/2 months pregnant with Everett, Vic & I went out to dinner one night at one of our favorite local restaurants, an Italian joint. I distinctly remember that night. I remember what I wore, I remember what I ordered, and 

Confessions of a Rockin mom #24:  Fears related to inclusion (or lack thereof)

Confessions of a Rockin mom #24: Fears related to inclusion (or lack thereof)

When I was a kid in elementary school, all of my differently-abled peers attended a separate class that was titled “self-contained.” Since I attended the general education classes, I never interacted with any of these children. These interactions (or lack thereof) were the first memories 

Confessions of a Rockin mom #23:  Fears about where my child will live someday

Confessions of a Rockin mom #23: Fears about where my child will live someday

We live in a modest home. Between Vic, me, the boys and our two large dogs, space is tight in our 2 bed/1.5 bath 1925 bungalow. But we love our home. Our boys are growing, however, and we know there will come a point when